Parkinson's Disease.

twilight_sparkle · 25-04-2012, 08:39 PM

I have a relative who is prescribed Cinnamett and Selegilene for her Parkinson's. The Cinnamett stops her shaking but makes her feel tired and weak.
What natural remedies would help? I have been suggested red wine and marijuana, any other ideas?
Plus, why is she not allowed to eat broad (fava) beans and mature chedder?
How does this interfere with her medication?

boudica52 · 26-04-2012, 02:35 PM

Patients with parkinsons have been show to be deficient in vitamin D. http://www.vitamindcouncil.org/healt...inson-disease/ .
Interestingly one of the cofactors of vitamin D-magnesium has been shown to reduce symptoms of PD. http://blog.imva.info/medicine/parkinsons-disease

Perhaps try 10,000iu's vitamin D3 daily for a month (with it's cofactors magnesium and vitamin K2 daily). A good multivitamin and mineral to cover any other deficiencies too. Then get her vitamin D status checked with a 25-hydroxy vitamin d test.

tenzingnorgay · 07-05-2012, 05:49 AM

Magnesium and Vitamin D, definitely.

Also B12. B12 deficiency can mimic Parkinsons.

Selenium. Parkinsons' patients have been shown to have decreased levels of selenium compared to those without Parkinson's.

martg · 07-05-2012, 06:00 AM

I'm not an expert, the only alternate remedy I have heard of is Cannabis.

But I would suggest trying eating the raw leaf, it seems to have remarkable medical properties and it certainly won't do any harm.

http://www.youtube.com/watch?v=qgEP9FdIzT8

twilight_sparkle · 07-05-2012, 09:40 PM

That's really good, I want to get her some weed, but I wouldn't want her to get nicked for it!!

junglematic · 11-05-2012, 02:34 AM

http://news.bbc.co.uk/1/hi/health/1169980.stm

Ecstasy 'relieves Parkinson's Disease'

Tim Lawrence says ecstasy has helped him
Tim Lawrence has found a drug that is far more effective at controlling the symptoms of his Parkinson's Disease than any prescribed by a doctor.

The only problem is that it is Ecstasy, the illegal and dangerous stimulant much favoured by night-club ravers.

His discovery could overturn 30 years of medical thought, and eventually lead to a new treatment for Parkinson's.

However, some scientists fear the short term effect might be outweighed by longer term severe damage to his health.

Tim used to be a film stuntman performing feats of physical bravery.

It is illegal, but there is not really a punishment out there that could match what I go through on a day to day basis

Tim Lawrence
Now he spends much of his day either unable to move at all, or twitching uncontrollably.

Tim suffers from young-onset Parkinson's Disease, a rare form of an illness that usually hits the elderly.

The condition is slowly freezing up his body.

Side effects

Tim
Tim can perform gymnastic feats while on ecstasy
Like many people who contract the illness early in life, Tim suffers just as badly from the drug he takes to combat the disease.

The drug, L-DOPA helps to unlock his frozen limbs, but it also gives him wild, flailing movements called dyskinesias.

L-DOPA replaces the vital brain chemical called dopamine that is in short supply in Parkinson's patients.

The drug is highly effective at first, but within a few years side effects begin to appear.

These are particularly severe in those who get Parkinson's early - of whom there are 8,000 in the UK alone.

However, until now scientists have failed to come up with an effective alternative for L-DOPA, or any treatment to moderate its effects.

Chance discovery

Tim Lawrence
Tim used to have a daredevil lifestyle
Tim made the discovery about Ecstasy completely by chance. He had taken the drug while on a night-club visit with friends.

He said: "I was just suddenly aware that everything was completely smooth, as though I never had the disease in the first place."

The drug appears to tame his body and give him back control over his limbs.

Within two hours of taking an Ecstasy tablet, Tim is able to do backflips, somersaults and swallow-dives in a gym.

He said: "We take risks every day of our lives. It is illegal, but there is not really a punishment out there that could match what I go through on a day to day basis."

Despite the positive effects he derives from Ecstasy, Tim only takes the drug a couple of times a month - usually when he is out clubbing.

"I would not want to feel like that all day every day. It is an unreal state."

Dangers of the drug

There are serious health risks associated with taking Ecstasy.

It is rarely fatal, but it can cause memory black outs and depression. Research also suggests it might be particularly damaging to people with Parkinson's.

There just may be in his experience a clue - a vital clue - that is going to help us find a way forward

Mary Baker, Parkinson's Disease Society
The challenge for scientists is to find a drug that will replicate the effect of Ecstasy with none of the attendant dangers.

Professor David Brooks, of Hammersmith Hospital, said Tim's discovery was fascinating.

He is particularly intrigued because Ecstasy appears to have no impact on dopamine levels. It does, however, trigger the release of massive amounts of another brain chemical, serotonin.

High levels of serotonin stimulate a feeling of euphoria, but it had not been thought to have any impact on movement.

Yet tests carried out by Professor Brooks show that Ecstasy alone is enough to unfreeze Tim's limbs - in fact dopamine appears to play no part in the process at all.

Mary Baker, of the Parkinson's Disease Society, said: "The society has to say that it absolutely cannot condone in any way the taking of an illegal substance.

"But the society has a moral obligation to ensure that some research follows Tim's experience because there just may be in his experience a clue - a vital clue - that is going to help us find a way forward in the better management of Parkinson's Disease."

302bluefog · 12-05-2012, 12:15 AM

My grandpop had Parkinson's, I wish i could go back before he died and let him try weed.

25-04-2012, 08:39 PM	#1
twilight_sparkle Senior Member Join Date: Apr 2012 Location: Isle of Wight Posts: 1,656	Parkinson's Disease. I have a relative who is prescribed Cinnamett and Selegilene for her Parkinson's. The Cinnamett stops her shaking but makes her feel tired and weak. What natural remedies would help? I have been suggested red wine and marijuana, any other ideas? Plus, why is she not allowed to eat broad (fava) beans and mature chedder? How does this interfere with her medication?

26-04-2012, 02:35 PM	#2
boudica52 Senior Member Join Date: Nov 2011 Posts: 372	Patients with parkinsons have been show to be deficient in vitamin D. http://www.vitamindcouncil.org/healt...inson-disease/ . Interestingly one of the cofactors of vitamin D-magnesium has been shown to reduce symptoms of PD. http://blog.imva.info/medicine/parkinsons-disease Perhaps try 10,000iu's vitamin D3 daily for a month (with it's cofactors magnesium and vitamin K2 daily). A good multivitamin and mineral to cover any other deficiencies too. Then get her vitamin D status checked with a 25-hydroxy vitamin d test.

07-05-2012, 05:49 AM	#3
tenzingnorgay Inactive Join Date: Nov 2009 Posts: 3,443	Magnesium and Vitamin D, definitely. Also B12. B12 deficiency can mimic Parkinsons. Selenium. Parkinsons' patients have been shown to have decreased levels of selenium compared to those without Parkinson's.

07-05-2012, 09:40 PM	#5
twilight_sparkle Senior Member Join Date: Apr 2012 Location: Isle of Wight Posts: 1,656	That's really good, I want to get her some weed, but I wouldn't want her to get nicked for it!!

11-05-2012, 02:34 AM	#6
junglematic Senior Member Join Date: Apr 2012 Location: The Jungle Posts: 115	http://news.bbc.co.uk/1/hi/health/1169980.stm Ecstasy 'relieves Parkinson's Disease' Tim Lawrence says ecstasy has helped him Tim Lawrence has found a drug that is far more effective at controlling the symptoms of his Parkinson's Disease than any prescribed by a doctor. The only problem is that it is Ecstasy, the illegal and dangerous stimulant much favoured by night-club ravers. His discovery could overturn 30 years of medical thought, and eventually lead to a new treatment for Parkinson's. However, some scientists fear the short term effect might be outweighed by longer term severe damage to his health. Tim used to be a film stuntman performing feats of physical bravery. It is illegal, but there is not really a punishment out there that could match what I go through on a day to day basis Tim Lawrence Now he spends much of his day either unable to move at all, or twitching uncontrollably. Tim suffers from young-onset Parkinson's Disease, a rare form of an illness that usually hits the elderly. The condition is slowly freezing up his body. Side effects Tim Tim can perform gymnastic feats while on ecstasy Like many people who contract the illness early in life, Tim suffers just as badly from the drug he takes to combat the disease. The drug, L-DOPA helps to unlock his frozen limbs, but it also gives him wild, flailing movements called dyskinesias. L-DOPA replaces the vital brain chemical called dopamine that is in short supply in Parkinson's patients. The drug is highly effective at first, but within a few years side effects begin to appear. These are particularly severe in those who get Parkinson's early - of whom there are 8,000 in the UK alone. However, until now scientists have failed to come up with an effective alternative for L-DOPA, or any treatment to moderate its effects. Chance discovery Tim Lawrence Tim used to have a daredevil lifestyle Tim made the discovery about Ecstasy completely by chance. He had taken the drug while on a night-club visit with friends. He said: "I was just suddenly aware that everything was completely smooth, as though I never had the disease in the first place." The drug appears to tame his body and give him back control over his limbs. Within two hours of taking an Ecstasy tablet, Tim is able to do backflips, somersaults and swallow-dives in a gym. He said: "We take risks every day of our lives. It is illegal, but there is not really a punishment out there that could match what I go through on a day to day basis." Despite the positive effects he derives from Ecstasy, Tim only takes the drug a couple of times a month - usually when he is out clubbing. "I would not want to feel like that all day every day. It is an unreal state." Dangers of the drug There are serious health risks associated with taking Ecstasy. It is rarely fatal, but it can cause memory black outs and depression. Research also suggests it might be particularly damaging to people with Parkinson's. There just may be in his experience a clue - a vital clue - that is going to help us find a way forward Mary Baker, Parkinson's Disease Society The challenge for scientists is to find a drug that will replicate the effect of Ecstasy with none of the attendant dangers. Professor David Brooks, of Hammersmith Hospital, said Tim's discovery was fascinating. He is particularly intrigued because Ecstasy appears to have no impact on dopamine levels. It does, however, trigger the release of massive amounts of another brain chemical, serotonin. High levels of serotonin stimulate a feeling of euphoria, but it had not been thought to have any impact on movement. Yet tests carried out by Professor Brooks show that Ecstasy alone is enough to unfreeze Tim's limbs - in fact dopamine appears to play no part in the process at all. Mary Baker, of the Parkinson's Disease Society, said: "The society has to say that it absolutely cannot condone in any way the taking of an illegal substance. "But the society has a moral obligation to ensure that some research follows Tim's experience because there just may be in his experience a clue - a vital clue - that is going to help us find a way forward in the better management of Parkinson's Disease."

12-05-2012, 12:15 AM	#7
302bluefog Senior Member Join Date: Aug 2011 Posts: 5,688	My grandpop had Parkinson's, I wish i could go back before he died and let him try weed.